Cystic Fibrosis: A Day in the Life
CYSTIC FIBROSIS: A DAY IN THE LIFE
For a young person living with Cystic Fibrosis (CF), each day is a struggle just to breath. The lungs are clogged with thick mucus requiring constant medication and intrusive therapies, even someone to pound on the back to beat the congestion out. There is no cure and, without a lung transplant, the disease can become a death sentence. This is the day-to-day struggle faced by parents and their children with CF. Join host, Dr. Winnie King as we follow one young woman's story. Then meet a young man whose life was saved by having a lung transplant, and learn why some CF patients do not choose this option.
Guests:
Kim Bene - young woman living with Cystic Fibrosis
Andy Bene - Kim's younger brother
Chris Bene - Kim's mother
David Cross - Cystic Fibrosis patient who had successful lung transplant and lost two brothers and a sister to CF.
Dr. Joan Decelie-Germana - Director, Cystic Fibrosis Center at Schneider Children's Hospital, New Hyde Park, NY; :Assistant Professor, Pediatrics, Albert Einstein College of Medicine, NY
Resources:
The Cystic Fibrosis Foundation
1-800-251-1222
http://www.cff.org/National Heart, Lung and Blood Institute
1-301-251-1222
